Comments on: Sleepy Sarah: My Life with Narcolepsy Part 1: The Beginning

By: Sarah

Sarah — Thu, 22 May 2014 20:46:51 +0000

Thank YOU for reading! I’m raising my almost too hot for consumption beer to you Cheers!

By: Sarah (est. 1975)

Sarah (est. 1975) — Thu, 22 May 2014 19:17:56 +0000

Thanks so much for sharing! I’ve got the *regular* ol’ lepsy. It’s not THAT bad to live with but there are definitely challenges. Here’s to hidden diseases! *clink*

By: Sarah

Sarah — Tue, 06 May 2014 02:04:02 +0000

I completely understand. Unfortunately, narcoleptics also have a difficult time falling asleep at night due to medications and the anxiety that surrounds sleep for narcoleptics.

By: April (@100LBC)

April (@100LBC) — Tue, 06 May 2014 02:02:08 +0000

Sleep sounds so good, even unexpected… I should say especially unexpected. Not to make light of narcolepsy. I just struggle falling to sleep and am woken up several times a night by a sleepless toddler.

By: Iva AwesomelyOZ

Iva AwesomelyOZ — Thu, 01 May 2014 13:48:26 +0000

I was going to ask but you answered it for me if you had narcolepsy with cataplexy. I have hypersomnia which is one notch below and less recognized and known about. It’s excessive daytime sleepiness and it’s very crippling. Many times I get muscle weakness and sensation loss due to the exhaustion but I’m doing a bit better by learning ways to ensure I’m not that tired. Thankfully anxiety doesn’t trigger it because I’m an anxious mess. Weather affects me more than anything else and that wonderful time of the female cycle. Either way, it’s horrible and affects your quality of life to the point that you just don’t want to function some days. Mine manifested around high school so that’s the typical time symptoms generate but I was diagnosed at 22 after a long battle with my exhaustion. I can’t take the stimulants as I don’t like that dependency so I’m trying homeopathy, getting small but decent results hoping for the best. Wish you the same – I’ll be at the Blog U conference this year and hope to see you there Sarah! -Iva

By: Sarah

Sarah — Tue, 29 Apr 2014 13:53:55 +0000

Oh no shit? When are you doing your sleep study? I’ll have to check out the blogess too.

By: dribblesngrits

dribblesngrits — Tue, 29 Apr 2014 11:11:11 +0000

My neurologist thinks i have narcolepsy too. We still need to confirm it with a sleep study. The Bloggess also has mentioned having narcolepsy, so we aren’t alone.

By: Katie@SomewhatSaneMom

Katie@SomewhatSaneMom — Tue, 29 Apr 2014 00:25:51 +0000

Wow!!! That was really informative and eye opening. Thanks for sharing! I look forward to reading more about your journey

By: Sarah

Sarah — Mon, 28 Apr 2014 20:02:45 +0000

Thanks! Yes, wine and laughter are truly the best (and my favorite) forms of medicine I look back now and wonder how the hell I even graduated being undiagnosed in law school.

By: Kelli Mayon

Kelli Mayon — Mon, 28 Apr 2014 20:00:17 +0000

Wow Sarah. Law School,
Bar exam, marriage, raising a child…. all with narcolepsy. Amazing. I similarly struggle with an auto immune issue and have had to rearrange a few things in my life. Wine and laughter fix a lot. I really enjoy your blog!